Guest House - www.KCFreedom.org

QuintriX · QuintriX

Privacy Policy for Keratoconus FreedomAt Keratoconus Freedom, accessible from https://kcfreedom.org, our paramount priorities encompass the privacy of our visitors. This Privacy Policy statement contains the types of information that is collected and recorded by Keratoconus Freedom and...

Larsen PhD · gk

Did anyone try in the past the holocomb cross linking ? And what is the feedback after years ? Thank you

Sven Rehnskiold PhD · Anonymous

Prevalence of Subclinical Keratoconus in Children with Astigmatism in IraqAbstract Background: Keratoconus is a progressive ectatic corneal pathology that involves both eyes, its usually asymmetrical, its early diagnosis and treatment are vital for the prevention of ocular morbidity th...

Kreading · Sun Mar 7 4:24 AM, 2021 by Kreading

This seems to be rather good. Topography and Pachymetry Guided, Rapid Epi-on Corneal Cross-Linking for Keratoconus: 7-year Study Results. Purpose: To evaluate custom fast cross-linking (cfCXL) treatment of keratoconus. Methods: “Custom fast cross-linking” or “cfCXL” is a keratoconus trea...

drgoren · drgoren

Treatment of Stage II Keratoconus 1 Year Results Uncorrected visual acuity: OD OS Pre-op UCVA: 0.6 0.4 1 Year Post-op UCVA: 0.8 1.0

drgoren · drgoren

These are the long-term results of a patient operated in 1995 for Stage II Keratoconus combined with Classical Myopia (Nearsightedness):

QuintriX · QuintriX

RE: Intacs w/xlinking or mini ark? This post was recovered today after a software error occured, this problem is getting looked at, in the mean time here is the post: Hello everyboy, I am Lutz from Europe (Germany). I have just received intacs and will have an x linking for my better eye the next weeks. F...

Deb · Anonymous

7 weeks post corneal graft and I was just wondering if anyone else who has been in my position has suffered with extreme light sensitivity. I have had 2 procedures following the graft. A rebuild because the cornea was detached and replacement of sutures that had come loose. Im trying to expose my e...

durgazone · Anonymous

Hi, just wondered if any one can tell me if there is a link between keratoconus and sjogrens syndrome? Does a diagnoses of both give a higher chance of blindness? LH

laykel · Mon Sep 25 6:26 PM, 2017 by laykel

hello everyone, i am new to this forum and i sincerely finded interesting and has lots of information, i would like from you if possible to recommend me a clinic in france or europe that is specialised in crosslinking topoguided PRK i have astigmatism of about 2.5 in my left eye and keratoconus . also wh...

Kelly · Anonymous

i had this treatment done yesterday in my left eye, the protective lense is uncomfortable and is moving arounear my eye, its not sitting comfortably on the cornea.

Remo · Anonymous

I started having problems with my left eye about 15 years ago. My left cornea had rapidly changing it's shape over the space of 2 - 4 months. My eye doctor examined me and saw a change in my eye's topography, and noticed a thinning in my cornea. An update in my Rx returned my eyesight to something near no...

Allen

I was diagnosed with keratoconus almost two years ago and started off with GP contacts. I was told they would be uncomfortable and I would have to get used to them but what I was experiencing was not right. My eyes would turn bloodshot red to the point you'd think I was stoned beyond belief. I could feel th...

Darragh · Darragh

Hello I had both my eyes cross linked last year, I have seen no improvement in vision, my doc told me that my eyes are improving that they are becoming more flat, I was told before any procedures that I'm not suitable for laser as my cornea is too thin, I'm not happy with my results because my vision is still...

Wayne · Anonymous

It's been a year since my transplant. I was seeing 20/30 and after stitch removal a month ago my visions is 20/125. My Doc says I have high astigmatism and I'm scheduled for incision procedure next. Just wanted to know if anyone has had this procedure and how was the results. I miss playing golf and drivi...

gayleb · Anonymous

Hi everyone, I found out the other day that my graft is not going to last much longer. I had it done in 1990. It has few cells left. Vision wise it is better than it has ever been and feels fine. I wonder if anyone else here has had to have another transplant. Can anyone tell me what it feels like when the graft i...

Kane · MarkW

Hello, I am 2 yrs post intacs and can only get 20/40 vision. My rx is +4.25 -6.00cyl. Dr. thinck crosslinking will set me up for PRK in time. Any thoughts? Thanks

drgoren · drgoren

6 Month Results Right Eye (OD) Pre-op: October 29, 2009 UCVA: 0.2-0.3 6 Month Post-op: June 14, 2010 UCVA: 0.9 Left Eye (OS) Pre-op: October 29, 2009 UCVA: 0.16-0.2 6 Month Post-op: June 14, 2010 UCVA: 0.5 The next examination will be the 1 year control in December 2010. The results will be posted on...

Vikram · Cary

I have requested for my PW to be sent to me. I joined a long time ago I don't even remember if I posted But I went to join again and says the email is already in use to now I am trying to get my PW or info so I can get back in. I think the user name was Cary But my email is goingsc@comcast.net If you can help I would be VE...

Kreading · Anonymous

Obviiously I am new here and I don't mean to be a pain off the bat but this white on black makes it so very hard for me to read on this site and even the small wording on some of the post is too small to read too...part of the game of having loss of vision I suppose... I have had 1 cornea transplant due to kerat...

blur · Anonymous

i just want to say, my husband bless him is now registered blind due to kc, as his was so bad nothing they could do? but we have managed fine he now has a guide dog, which frees me up life is good but very different. he is only 40 thanks

Kreading · JustSomeGuy

Hi I'm 20 years old and have KC and recently went to a specialist for consultation, and he informed me that the new hybrid contact would probably be my last line of defense before surgery and I was just wondering, does anyone have much news about the new hybrid contact? Thanks in advance.

A new user..... · STANzboy

Hi i am stanz from india.I hav keratoconus in my eyes since last 6 years.i will go for the c3-r soon.I just wanted to know that epithellium removal during the c3-r is necceesary or not?coz i hav read in many sites that without epithellium removal the treatment is possible and useful.....thanks

JNewman · LYNNDA

hello ,my name is lynnda I am currently on a quest to find out if crosslinking will soon be available in northern ireland. i know it is available in dublin and i will contact them. my son is 16 and was diagnosed earlier this year.My optician did not tell us about this treatment but when i recently we...

QuintriX · Anonymous

Years ago I found a patented treatment on the Internet. It appears to be the use of eye drops utilizing pro-tease inhibitors. An E-mail to the patent holder, Stephen Quay, did not get any responses. I presented a printout of the detailed...

Anonymous

Hi, everybody! I used to be a member of the Kcenter boards, but I don't know what happened to them. I'm glad I found this site, and I'm looking forward to visiting often.

Bethaniej · Anonymous

I have checked through your list of references and found some quite good and up to date articles. Keep up the good work. Bezalel Schendowich, OD

Anonymous

hy, i am sabine s. from the german "keralens-forum". my english is'nt perfect, and i am not sure, if anybody is able to understand me, i'll do my best. your forum is very interesting, but i have the wrong browser, so i cannot be a member in your forum. i have kc since 12 years at both eyes and 4 corneat...

Topic		Started By	Replies	Views	Last Post

	STICKY: Privacy Policy (Preview) Privacy Policy for Keratoconus FreedomAt Keratoconus Freedom, accessible from https://kcfreedom.org, our paramount priorities encompass the privacy of our visitors. This Privacy Policy statement contains the types of information that is collected and recorded by Keratoconus Freedom and...	QuintriX	1	1279	Sat Aug 20 12:33 PM, 2022 by Sven Rehnskiold PhD
	Holocomb cross linking (Preview) Did anyone try in the past the holocomb cross linking ? And what is the feedback after years ? Thank you	gk	3	5318	Sun Jan 28 8:11 PM, 2024 by Larsen PhD
	Prevalence of Subclinical Keratoconus in Children with Astigmatism in Iraq (Preview) Prevalence of Subclinical Keratoconus in Children with Astigmatism in IraqAbstract Background: Keratoconus is a progressive ectatic corneal pathology that involves both eyes, its usually asymmetrical, its early diagnosis and treatment are vital for the prevention of ocular morbidity th...	Anonymous	2	1333	Sat Mar 4 9:00 PM, 2023 by Sven Rehnskiold PhD
	Topography and Pachymetry Guided, Rapid Epi on Crosslinking (Preview) This seems to be rather good. Topography and Pachymetry Guided, Rapid Epi-on Corneal Cross-Linking for Keratoconus: 7-year Study Results. Purpose: To evaluate custom fast cross-linking (cfCXL) treatment of keratoconus. Methods: “Custom fast cross-linking” or “cfCXL” is a keratoconus trea...		1	2645	Sun Mar 7 4:24 AM, 2021 by Kreading
	3D Topography 1 Year Results (Preview) Treatment of Stage II Keratoconus 1 Year Results Uncorrected visual acuity: OD OS Pre-op UCVA: 0.6 0.4 1 Year Post-op UCVA: 0.8 1.0	drgoren	1	8072	Fri Sep 4 9:49 PM, 2020 by Roxy
	15 Year Results (KC+Myopia) (Preview) These are the long-term results of a patient operated in 1995 for Stage II Keratoconus combined with Classical Myopia (Nearsightedness):	drgoren	1	7582	Fri Sep 4 9:46 PM, 2020 by Roxy
	A message from Lutz (Preview) RE: Intacs w/xlinking or mini ark? This post was recovered today after a software error occured, this problem is getting looked at, in the mean time here is the post: Hello everyboy, I am Lutz from Europe (Germany). I have just received intacs and will have an x linking for my better eye the next weeks. F...	QuintriX	1	7524	Fri May 8 4:31 PM, 2020 by Mabell MD
	Post corneal transplant and light sensitivity (Preview) 7 weeks post corneal graft and I was just wondering if anyone else who has been in my position has suffered with extreme light sensitivity. I have had 2 procedures following the graft. A rebuild because the cornea was detached and replacement of sutures that had come loose. Im trying to expose my e...	Anonymous	1	3713	Thu Oct 17 11:53 AM, 2019 by Deb

	keratoconus with sjogrens syndrome (Preview) Hi, just wondered if any one can tell me if there is a link between keratoconus and sjogrens syndrome? Does a diagnoses of both give a higher chance of blindness? LH	Anonymous	5	10014	Thu Dec 28 3:42 PM, 2017 by durgazone
	Clinics in Europe (Preview) hello everyone, i am new to this forum and i sincerely finded interesting and has lots of information, i would like from you if possible to recommend me a clinic in france or europe that is specialised in crosslinking topoguided PRK i have astigmatism of about 2.5 in my left eye and keratoconus . also wh...		2	4676	Mon Sep 25 6:26 PM, 2017 by laykel
	Crosslinking (Preview) i had this treatment done yesterday in my left eye, the protective lense is uncomfortable and is moving arounear my eye, its not sitting comfortably on the cornea.	Anonymous	1	6447	Mon Dec 7 3:26 AM, 2015 by Kelly
	Problems with my cornea and vision changes - keratoconus or not? (Preview) I started having problems with my left eye about 15 years ago. My left cornea had rapidly changing it's shape over the space of 2 - 4 months. My eye doctor examined me and saw a change in my eye's topography, and noticed a thinning in my cornea. An update in my Rx returned my eyesight to something near no...	Anonymous	1	6187	Fri Feb 13 1:14 PM, 2015 by Remo
	Not this again (Preview) I was diagnosed with keratoconus almost two years ago and started off with GP contacts. I was told they would be uncomfortable and I would have to get used to them but what I was experiencing was not right. My eyes would turn bloodshot red to the point you'd think I was stoned beyond belief. I could feel th...	Allen	5	10057	Sat Nov 24 1:56 PM, 2012 by Anonymous
	What to do after cxl (Preview) Hello I had both my eyes cross linked last year, I have seen no improvement in vision, my doc told me that my eyes are improving that they are becoming more flat, I was told before any procedures that I'm not suitable for laser as my cornea is too thin, I'm not happy with my results because my vision is still...	Darragh	2	8190	Fri Jun 8 4:48 PM, 2012 by Darragh
	incisions after transplant (Preview) It's been a year since my transplant. I was seeing 20/30 and after stitch removal a month ago my visions is 20/125. My Doc says I have high astigmatism and I'm scheduled for incision procedure next. Just wanted to know if anyone has had this procedure and how was the results. I miss playing golf and drivi...	Anonymous	1	7374	Fri Dec 16 4:45 PM, 2011 by Wayne
	Corneal graft on its way out. (Preview) Hi everyone, I found out the other day that my graft is not going to last much longer. I had it done in 1990. It has few cells left. Vision wise it is better than it has ever been and feels fine. I wonder if anyone else here has had to have another transplant. Can anyone tell me what it feels like when the graft i...	Anonymous	3	26317	Fri Nov 4 3:31 PM, 2011 by gayleb

	2 yrs post intacs and considering X-linking. Any thoughts? (Preview) Hello, I am 2 yrs post intacs and can only get 20/40 vision. My rx is +4.25 -6.00cyl. Dr. thinck crosslinking will set me up for PRK in time. Any thoughts? Thanks	MarkW	1	8046	Mon May 2 3:57 PM, 2011 by Kane
	Advanced Stage IV Keratoconus Update (Preview) 6 Month Results Right Eye (OD) Pre-op: October 29, 2009 UCVA: 0.2-0.3 6 Month Post-op: June 14, 2010 UCVA: 0.9 Left Eye (OS) Pre-op: October 29, 2009 UCVA: 0.16-0.2 6 Month Post-op: June 14, 2010 UCVA: 0.5 The next examination will be the 1 year control in December 2010. The results will be posted on...	drgoren	7	10844	Fri Jan 21 5:58 AM, 2011 by drgoren
	Help Please Admin (Preview) I have requested for my PW to be sent to me. I joined a long time ago I don't even remember if I posted But I went to join again and says the email is already in use to now I am trying to get my PW or info so I can get back in. I think the user name was Cary But my email is goingsc@comcast.net If you can help I would be VE...	Cary	2	7521	Sat Oct 2 6:57 AM, 2010 by Vikram
	I got issues and am venting... ( 1 2 ) (Preview) Obviiously I am new here and I don't mean to be a pain off the bat but this white on black makes it so very hard for me to read on this site and even the small wording on some of the post is too small to read too...part of the game of having loss of vision I suppose... I have had 1 cornea transplant due to kerat...	Anonymous	9	45896	Mon Jun 14 2:29 AM, 2010 by Kreading
	my husband (Preview) i just want to say, my husband bless him is now registered blind due to kc, as his was so bad nothing they could do? but we have managed fine he now has a guide dog, which frees me up life is good but very different. he is only 40 thanks	Anonymous	2	7491	Mon Jun 7 8:43 PM, 2010 by blur
	I was just wondering about the brand new hybrid contacts... (Preview) Hi I'm 20 years old and have KC and recently went to a specialist for consultation, and he informed me that the new hybrid contact would probably be my last line of defense before surgery and I was just wondering, does anyone have much news about the new hybrid contact? Thanks in advance.	JustSomeGuy	1	7153	Sun Jun 21 2:23 AM, 2009 by Kreading
	A new user..... (Preview) Hi i am stanz from india.I hav keratoconus in my eyes since last 6 years.i will go for the c3-r soon.I just wanted to know that epithellium removal during the c3-r is necceesary or not?coz i hav read in many sites that without epithellium removal the treatment is possible and useful.....thanks	STANzboy	2	7341	Sun Jan 25 12:35 PM, 2009 by sharoosunidhi
	x linking (Preview) hello ,my name is lynnda I am currently on a quest to find out if crosslinking will soon be available in northern ireland. i know it is available in dublin and i will contact them. my son is 16 and was diagnosed earlier this year.My optician did not tell us about this treatment but when i recently we...	LYNNDA	3	8146	Wed Jun 4 6:44 PM, 2008 by JNewman

	Patented KC treatment-2002 (Preview) Years ago I found a patented treatment on the Internet. It appears to be the use of eye drops utilizing pro-tease inhibitors. An E-mail to the patent holder, Stephen Quay, did not get any responses. I presented a printout of the detailed...	Anonymous	1	7053	Sun Apr 9 8:53 AM, 2006 by QuintriX
	New here! (Preview) Hi, everybody! I used to be a member of the Kcenter boards, but I don't know what happened to them. I'm glad I found this site, and I'm looking forward to visiting often.	Anonymous	2	7295	Mon Mar 20 12:57 PM, 2006 by
	References (Preview) I have checked through your list of references and found some quite good and up to date articles. Keep up the good work. Bezalel Schendowich, OD	Anonymous	2	6563	Sun Jan 8 1:15 PM, 2006 by Bethaniej
	hello, visite from germany (Preview) hy, i am sabine s. from the german "keralens-forum". my english is'nt perfect, and i am not sure, if anybody is able to understand me, i'll do my best. your forum is very interesting, but i have the wrong browser, so i cannot be a member in your forum. i have kc since 12 years at both eyes and 4 corneat...	Anonymous	6	7533	Sun Sep 25 2:51 AM, 2005 by
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