x linking - www.KCFreedom.org

Date: Wed May 28 4:03 PM, 2008

x linking

JNewman · Veteran Member

Lynnda, there are several parents on this board who have had their children's eyes crosslinked at around the same age. My heart goes out to you, as I know that this preys on your mind, as you say, day and night. My own son was diagnosed at an older age, and had crosslinking and intacs at the age of 22. His vision is not perfect, but he manages to drive and do his college class work now without any corrective lenses. We had to travel from NY to CA because crosslinking was not widely available in the USA at the time, in fact it is only now in its clinical trials over here. I have never regretted making that trip. My only regret is that he did not tell us sooner that his vision was getting worse, because I feel that if we had the crosslinking even sooner, his vision would be even better today.

Continue to interview doctors--I believe some of the younger patients were treated in Germany. There was a woman inquiring recently from Chicago, who took her son there very shortly after he was diagnosed.

If you join this community, you are not alone! There are many other parents and patients who have been through it and are eager to share their stories, insights, and encouragement.

All the best--feel free to private message me if you wish
Joanne

Date: Mon Jun 2 12:50 PM, 2008

Joanne,
Thankyou for taking the time to reply.
I have since spoken to the Wellington Clinic in Dublin and they say the would be happy to see my son.
My worry would be though,that his bad eye deviates outwards and i wonder would this be a contra indication for crosslinking ,but i know no one can say for sure untill he is examined.

For the first time at the weekend i tried to talk to him about treatment but it his hard to get through to him that his wellbeing is more important than any doctors fees.It is hard at 16 to think about the future and to realise how things may be.

I am so glad to hear that your son's treatment has been a success.Hopefully you will have no more worries.

my children are going off on holiday soon with their dad so maybe just for a few weeks i should concentrate on that and give my head a rest !

We have another optical appt in August so at that point things can be talked about further and perhaps i can pusuade him to have a consultation.

It has been a help to write things down and i feel less alone with this.

lynnda

JNewman · Veteran Member

I can also empathize about how stubborn a teenaged son can be! But investing in this treatment now can spare much future expense in terms of other treatments.

and, you are also right, you do need a rest. Coping with all of this, at the time of my son's diagnosis, caused all kinds of stress related physical problems for me, so please take care of yourself and rest a bit while the family is on holiday.

You are on the right track, stick with it.

Joanne